At The Society for the Study of Celiac Disease, we prioritize data privacy and ensure that all usage of our services is done so under informed consent. We understand the importance of safeguarding personal information and adhere to strict privacy protocols to protect the confidentiality and integrity of member data.
When individuals choose to participate in membership within SSCD, they do so voluntarily and with full knowledge of how their data will be used. We obtain informed consent from each member, explaining the purpose of data collection, the types of data that will be collected, and how it will be handled and protected.
We strictly adhere to applicable data protection regulations, including but not limited to HIPAA (Health Insurance Portability and Accountability Act) and GDPR (General Data Protection Regulation), ensuring that member data is treated with the utmost confidentiality and used only for the intended purposes related to the specific study or trial.
We work diligently to maintain the highest standards of data privacy and security, implementing robust technical and organizational measures to safeguard member information against unauthorized access, loss, or misuse.
Should you have any questions or concerns about data privacy or informed consent, our dedicated team is here to provide you with the necessary information and guidance. Your trust and confidence in our services are of utmost importance to us, and we are committed to upholding the highest ethical standards.
For more information, please visit celiac.org/privacy-policy-and-terms-of-use.
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